Giulietta (Juju), a 3 year old in Rutherford, has a very rare genetic syndrome that only 200 kids in the world have. The amazing parents of CTNNB1 syndrome have banned together to create a foundation that was able to start genetic research for kids like her with similar syndromes. Geneticists announced they will be able to completely cure her using gene editing, in the not so distant future.
Juju’s parents came up with a creative way to do their first Socially Distant Fundraiser to help Cure CTNNB1. Jack O-Lantern Blaze will take place at 164 Eastern Way on Friday, October 30 to Sunday, November 1, 2020, from 6pm – 11pm. The Pumpkins will be ablaze, and can be seen from the sidewalk or street!
Donations are not necessary but greatly appreciated. You can donate directly through the Cure CTNNB1 website (www.curectnnb1.org) which is also tax deductible or through Venmo @jujuforjuju.
The family looks forward to seeing how their creative idea of a socially distant fundraiser works out. They are the first family doing one and can hopefully inspire other towns to do the same! “As always, the residents of Rutherford are amazing and we are proud and honored to be a part of this community. Thank you all for your support, prayers and well wishes. Hope to see you this weekend.”
If you want to learn more about Juju you can follow her on Instagram at jujuforjuju.