Giulietta (Juju), a 3 year old in Rutherford, has a very rare genetic syndrome that only 200 kids in the world have. The amazing parents of CTNNB1 syndrome have banned together to create a foundation that was able to start genetic research for kids like her with similar syndromes. Geneticists announced they will be able to completely cure her using gene editing, in the not so distant future.
Juju’s parents came up with a creative way to do their first Socially Distant Fundraiser to help Cure CTNNB1.